Something no one should ever have to go through is the loss of a child. But, for builder Stephen Molyneux, and his partner Ashleigh, they have spent this Christmas thinking of funeral songs for their young daughter.
At just three years old, Edith (Edie) Molyneux has been diagnosed with a fatal brain tumour. Suffering from headaches, which got progressively worse over six months, Edie would be left clutching her head in pain. However, due to her young age, she was unable to describe the pain that she was feeling. Therefore, doctors initially diagnosed the young girl with migraines. And, just to be safe, referred her for an MRI scan.
The results of this scan though, unfortunately, left the little girl’s parents completely, and utterly heartbroken. The results uncovered that Edie had a ‘lump’ in her brain stem. And, after further scans, doctors stated that they were 95% certain that Edie had a brain tumour called Diffuse Intrinsic Pontine Glioma (DIPG), a rare tumour that tends to only occur in children.
Due to the central location of the tumour, operating was out of the question for the young girl. And, here in the UK, chemotherapy was also not an option due to the levels needed for treatment. In fact, the levels of chemotherapy needed would end up poisoning the rest of Edie’s body. And, whilst radiotherapy would relieve the symptoms, it would do nothing to save young Edie’s life.
With a bleak diagnosis and negative outlook on treatment, things were looking hopeless for the young girl. However, luckily, Edith’s parents were offered a glimmer of hope. Her mom, Ashleigh, described: “Although here in the UK our options are limited, there are alternative pathways for Edie abroad.”
“At The Instituto de Oncología Intervencionista or “IDOI” in Monterrey, Mexico.”
“They are leaders in intra-arterial treatment for brain tumours and are recognized for DIPG treatment.”
“They use a multi-pronged attack, namely intra-arterial chemotherapy and immunotherapy.”
“Nowhere else in the world is using this treatment and nowhere else in the world are having the results that they are.”
“We have recently learned that a second child in as many months has just been given NED status (No Evidence of Disease).”
“These people are literally superheroes, changing people’s fate from a death sentence to life prospects.”
“Making DIPG a previously incurable fatal disease a thing of the past.”
However, to get Edie there, builder Stephen and his wife Ashleigh need to raise £300,000. To cover the cost of her treatment, and the flights to Mexico, the parents are fighting to help their daughter. Currently in Mexico to have her first consultation, the brave girl and her parents, are hoping things all go well.
Ashleigh also added: “We would love to exceed this figure to enable us to help other children and families in the future.”
So, what do you think? Can you help Edie and her family? If you can, head over to her donation page here.